Alex
Revisited
I
dont feel like writing today. I just read one of those books
that make
you feel like youve nothing left to say. If you havent read it,
please do.
Its a tiny book called
Alex: The Life of a Child, by Frank Deford, first published
more than twenty years ago now. I reread it every few years, and it never
fails to bring tears. Its Defords account of how his little
girl died of cystic fibrosis.
Such a story is bound to be sad,
but it didnt have to be beautiful. But Deford is a gifted writer, best
known for his way of capturing the human workings of sports. He has his
ups and downs: On a bad day he is merely very good. On his best days he is
unforgettable.
One of his most inspired sports
stories was a true account of a boxing match that ended in a
fighters death. He began by telling the reader that one of the two
young men would die, but not telling which one. Then he wrote profiles of
both young men, showing each as lovable, admirable, full of hope, and
unaware of impending tragedy. This simple approach created terrible
suspense and pathos. All you knew was that the end was going to be
heartbreaking. And it was.
That fight convinced Deford that
boxing should be abolished. No mere argument could have made his point as
powerfully as this plain narrative of two sweet boys, punching each
others heads. They might have been the best of friends. Deford
turned each into a vivid character. Fictionalized, this might have been a
great short story about war; as it is, its one of the most moving
sports stories ever written. Once youve read it, its hard to
watch boxing with a clear conscience.
![[Breaker quote: A sad modern masterpiece]](2004breakers/040422.gif) In
similarly plain style, Deford tells the story of a little girl, who happened
to be his daughter, born with a wasting disease that would kill her at age
eight. Her whole life was a painful effort to stave off death. Once again
the reader learns the tragic ending at the beginning, and this only
intensifies the suspense.
For Alex lives. Her parents know
shes going to die young, and she comes to realize it soon enough,
and every day of her life is one of torment a painful, incurable
lung disease, held at bay with painful therapy and her father
describes it all, including his own feelings, in an unsparing,
matter-of-fact way, not without humor.
He admits hes
sentimental: I cry at weddings. I cry when people lose on TV quiz
shows. I cry when people win on TV quiz shows. His and his
wifes feelings are very much part of the story, but he lets the
details of Alexs fate speak for themselves.
Still, this poor little victim
turns out to be anything but passive. She insists on living her life as if it
might be as it should have been.
Alex plays with dolls, makes
friends, asks why girls cant do the things boys are allowed to do,
fights with her older brother (though she adores him), and plans on
growing up. I wont have to do therapy when Im a
lady, will I? she asks her father hopefully.
But the sense of doom is always
there. Alex laughs a lot, even though it hurts her lungs; and after one bout
of laughing, coughing, and choking, she sits on her fathers lap and
says, Oh, Daddy, wouldnt this have been great? She
shuns self-pity, not wanting to upset her parents, but she cant help
feeling a bit wistful when she imaginates her own
coinage a normal life, just what it would be like not to
have a disease.
Pitying those who pity her, Alex
tries to cheer others up; she feels its her responsibility. She
learns early to bring out the best in people, even other children. But,
pretty as she is, she is ashamed of the way her disease has wasted her
body and slightly deformed her fingers. She confides her special
secret to an adult friend: She balls her hands into fists
so I wont have to see my own fingers.
Rarely since J.D. Salinger has a
child been brought to such vivid life on a printed page. Frank Deford has
given his child the gift of literary immortality. How touching to reflect
hed rather not have had to. Alex would have been 33 this month.
Joseph Sobran
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